- Last Updated on 15 April 2016
Every April 17, World Haemophilia Day is recognised worldwide to increase awareness of haemophilia and other inherited bleeding disorders.
Globally 1 in 1000 people has a bleeding disorder.
Most are not diagnosed and do not receive treatment
With increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
World Haemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH) which chose to bring the community together on April 17 in honour of WFH founder Frank Schnabel’s birthday.
In 2016 HFA will celebrate World Haemophilia Day to support the WFH goal of Treatment for All.
In people with bleeding disorders, the clotting process doesn’t work properly. As a result, people with bleeding disorders can bleed for longer than normal, and some may experience spontaneous bleeding into joints, muscles, or other parts of their bodies.
Hemophilia is a bleeding disorder that affects approximately 1 in 10,000 people. People with hemophilia do not have enough clotting factor VIII (hemophilia A) or IX (hemophilia B) in their blood which inhibits the clotting process.
The most common bleeding disorder is von Willebrand disease (VWD) which is generally less severe than other bleeding disorders. Many people with VWD may not know that they have the disorder because their bleeding symptoms are very mild.
Rare clotting factor deficiencies are disorders in which one of several clotting factors is missing or not working properly. Less is known about these disorders because they are diagnosed so rarely. In fact, many have only been discovered in the last 40 years.
Finally, inherited platelet disorders are conditions in which platelets don’t work the way they should, resulting in a tendency to bleed or bruise.
Light it Up Red!
Once again, landmarks and monuments around the world will support World Haemophilia Day by changing their lighting red on April 17. In Australia AAMI Park, Melbourne and the Perth Bell Tower will go red in support of World Haemophilia Day.
Find out More: WFH World Hemophilia Day page: www.wfh.org/whd/ →